Crazy day today. My body feeling lots of the stress today.
Got to talk to the Dr. today and he said he is working on Deano's stay and where we go from here.
It is some one's bedtime right now so got to cut it short.
Larry and Paul leaving tomorrow and May leaving on Tuesday.
Lots of adjusting.
Sunday, June 7, 2009
Saturday, June 6, 2009
Saturday, June 6
Hotel Namb's is becoming very popular these days. Who woulda thunk it??? Amazing what can happen when you just let it happen. Our two bedroom, 1 bathroom has now lovingly held so many wanting to be close to Deano.
Rumor was as I suspected. It appears that our sacred time at Kindred may be coming to a close. And may I say they have prepared him well for the next step of his journey.
I am hoping to catch the Dr. tomorrow so I can get a sense of where we go from here.
Okay what Hags failed to mention, I didn't really let him stay here. He actually worked for room and board. Hags painted the side of the garage which by the way was tagged with graffiti. He fixed the toilet. He fixed the fence that was becoming weak from Coffee jumping on it (that Coffee, you just got to love him). He cleaned up the fish tank and I think he even fixed the front door which was sticking. And what he doesn't know is I actually slept with my mouth open which means I was pretty relaxed and I haven't slept that relaxed since Deano's been gone. I am making another list for the next time you come so check that calendar of yours. THANK YOU!
:-)
Larry cooked dinner tonight. Those Namba boys sure can cook and yesterday he fixed a downspout for grandma Jo.
Well I will keep you abreast of our moving situation.
Rumor was as I suspected. It appears that our sacred time at Kindred may be coming to a close. And may I say they have prepared him well for the next step of his journey.
I am hoping to catch the Dr. tomorrow so I can get a sense of where we go from here.
Okay what Hags failed to mention, I didn't really let him stay here. He actually worked for room and board. Hags painted the side of the garage which by the way was tagged with graffiti. He fixed the toilet. He fixed the fence that was becoming weak from Coffee jumping on it (that Coffee, you just got to love him). He cleaned up the fish tank and I think he even fixed the front door which was sticking. And what he doesn't know is I actually slept with my mouth open which means I was pretty relaxed and I haven't slept that relaxed since Deano's been gone. I am making another list for the next time you come so check that calendar of yours. THANK YOU!
:-)
Larry cooked dinner tonight. Those Namba boys sure can cook and yesterday he fixed a downspout for grandma Jo.
Well I will keep you abreast of our moving situation.
Friday, June 5, 2009
Friday, June 5
Wow busy day:
Every one made it safely into town today.
And today we have a guest speaker:
I've learned why Nambs loves it here so much... It's really beautiful here.
Great to be joined by May and brother Larry today.
First a few clarifications... Contrary to popular belief in the greater Seattle area and who knows where else, Teri's name isn't Teri. It's Maria. Her Mom wanted to name her Theresa but her Dad won that battle. Dad called her Teri for short anyway so that's how it went till she had to actually use a name that was documented.
After she straightened me out on that I helped her out with some Seattle name stuff: Deano's last name is Coles. (He's a childhood neighbor) Dean's name is Nambs (or Namboid). Tim's last name is DiMarco (sorry about the spelling Tim). I'm Hags (Hrags), not Tim. When I showed up Nambs was expecting Tim, not me. It all worked out though.
My observations on Nambs yesterday and today: He's way in there when you look in his eyes and he's working his way out. It takes several moments for our questions to sink in and several more for his response. If there are no distractions his responses are mostly accurate. His Physical Therapists (I wish this thing had spell-check) tell me he is improving along these lines.
Yesterday I got to see him roll over to his left side unassisted several times. He has to really concentrate to drag his right leg over but he does it. Interestingly when he's doing his PT his brain works much faster and you can tell he is really focused. At PT they had him work on standing up from his wheelchair between parallel bars. His right arm can't help yet but he does most of the work himself. He took a couple very short steps with lots of help today. His left side is really strong but I could see his right quad flexing. He's chewed ice and swallowed so the Nilla Wafer therapy should be coming soon. I expect drastic improvement at that time.
I've been lucky to join Teri (Maria!) on the emotional roller coaster during my stay. It's heart-wrenching to see Nambs now compared to last Christmas when he visited us but it's equally overwhelming to see him standing himself up and working so hard. Things could be so much worse...
That being said, I encourage you to visit if you can. Nambs will give you a big "cowboy-grin" followed by hand holding and maybe a hug. It sure worked for me...
Thanks Teri for letting me blog tonight. (Or did you just want the night off?!)
Hags
Every one made it safely into town today.
And today we have a guest speaker:
I've learned why Nambs loves it here so much... It's really beautiful here.
Great to be joined by May and brother Larry today.
First a few clarifications... Contrary to popular belief in the greater Seattle area and who knows where else, Teri's name isn't Teri. It's Maria. Her Mom wanted to name her Theresa but her Dad won that battle. Dad called her Teri for short anyway so that's how it went till she had to actually use a name that was documented.
After she straightened me out on that I helped her out with some Seattle name stuff: Deano's last name is Coles. (He's a childhood neighbor) Dean's name is Nambs (or Namboid). Tim's last name is DiMarco (sorry about the spelling Tim). I'm Hags (Hrags), not Tim. When I showed up Nambs was expecting Tim, not me. It all worked out though.
My observations on Nambs yesterday and today: He's way in there when you look in his eyes and he's working his way out. It takes several moments for our questions to sink in and several more for his response. If there are no distractions his responses are mostly accurate. His Physical Therapists (I wish this thing had spell-check) tell me he is improving along these lines.
Yesterday I got to see him roll over to his left side unassisted several times. He has to really concentrate to drag his right leg over but he does it. Interestingly when he's doing his PT his brain works much faster and you can tell he is really focused. At PT they had him work on standing up from his wheelchair between parallel bars. His right arm can't help yet but he does most of the work himself. He took a couple very short steps with lots of help today. His left side is really strong but I could see his right quad flexing. He's chewed ice and swallowed so the Nilla Wafer therapy should be coming soon. I expect drastic improvement at that time.
I've been lucky to join Teri (Maria!) on the emotional roller coaster during my stay. It's heart-wrenching to see Nambs now compared to last Christmas when he visited us but it's equally overwhelming to see him standing himself up and working so hard. Things could be so much worse...
That being said, I encourage you to visit if you can. Nambs will give you a big "cowboy-grin" followed by hand holding and maybe a hug. It sure worked for me...
Thanks Teri for letting me blog tonight. (Or did you just want the night off?!)
Hags
Thursday, June 4, 2009
Thursday, June 4
There's nothing you can do that can't be done.
Nothing you can sing that can't be sung.
Nothing you can say but you can learn how to play the game. It's easy.
Nothing you can make that can't be made.
No one you can save that can't be saved.
Nothing you can do but you can learn how to be you in time. It's easy.
Big weekend with lots of visitors.
Tim, an old friend of Deano's made it in today from Seattle (but not really, actually via San Diego but from Seattle). Tomorrow May and, as I understand it, Larry (the twin of Gary), Deano's brother, are flying in tomorrow. And Paul, Deano's cousin, was also supposed to be in tonight (flying standby so I guess we will just wait and see if he makes it).
Tim spent the afternoon with Deano and they were able to take a cruise outside around the parking lot and through an obstacle course. Tim said Deano turns over to his left all on his own. He also thought Deano is in much better shape than what he expected. Tim was a little concerned that maybe Deano would not remember him and Tim said as soon as he saw Deano he knew right of way there was definitely recognition. Tim also got one of those huge teddy bear hugs from Deano.
Well it is pretty late and I have had a couple of Tim's Mrs. Lupner's and they are pretty darn deeeelicioussssssssss. We will see how they taste tomorrow morning.
All you need is love, All you need is love. Love is all you need.
Nothing you can know that can't be known.
Nothing you can see that isn't shown.
Nowhere you can be that isn't where you're meant to be. It's easy.
P.S. Hey Colorado Uncle Jim, what did you say about the Magic. That was some Magic displayed tonight. Oh that's right, just not by the Orlando Magic.
Nothing you can sing that can't be sung.
Nothing you can say but you can learn how to play the game. It's easy.
Nothing you can make that can't be made.
No one you can save that can't be saved.
Nothing you can do but you can learn how to be you in time. It's easy.
Big weekend with lots of visitors.
Tim, an old friend of Deano's made it in today from Seattle (but not really, actually via San Diego but from Seattle). Tomorrow May and, as I understand it, Larry (the twin of Gary), Deano's brother, are flying in tomorrow. And Paul, Deano's cousin, was also supposed to be in tonight (flying standby so I guess we will just wait and see if he makes it).
Tim spent the afternoon with Deano and they were able to take a cruise outside around the parking lot and through an obstacle course. Tim said Deano turns over to his left all on his own. He also thought Deano is in much better shape than what he expected. Tim was a little concerned that maybe Deano would not remember him and Tim said as soon as he saw Deano he knew right of way there was definitely recognition. Tim also got one of those huge teddy bear hugs from Deano.
Well it is pretty late and I have had a couple of Tim's Mrs. Lupner's and they are pretty darn deeeelicioussssssssss. We will see how they taste tomorrow morning.
All you need is love, All you need is love. Love is all you need.
Nothing you can know that can't be known.
Nothing you can see that isn't shown.
Nowhere you can be that isn't where you're meant to be. It's easy.
P.S. Hey Colorado Uncle Jim, what did you say about the Magic. That was some Magic displayed tonight. Oh that's right, just not by the Orlando Magic.
Wednesday, June 3, 2009
Wednesday, June 3
Late night tonight...
P.S. Thanks to Bob and Laura for leaving Baby Blu for Deano.
P.S.S. Thanks to Michael for trusting Deano with your Magical Blanket - he obviously remembers...
P.S. Thanks to Bob and Laura for leaving Baby Blu for Deano.
P.S.S. Thanks to Michael for trusting Deano with your Magical Blanket - he obviously remembers...
Tuesday, June 2, 2009
Tuesday, June 2
Beautiful faces and loud, empty places
Look at the way that we live(d)
Wastin' our time on cheap talk and wine
Left us so little to give
That same old crowd
Was like a cold dark cloud
That we could never rise above
This is another BIG day so I am going to say that we just may have passed mile marker 4 and are now headed toward mile marker 5.
Right now the adrenaline has surged and it almost makes you feel drunk. If you were drunk would you feel like you could keep running forever. Let me have another drink and I will let you know. (Just kidding it is a weeknight and I do have to work tomorrow).
I popped into the hospital around 11:45 this morning and I am so happy that when I was there the occupational therapist, Lana, made a visit. What a truly, truly, truly nice woman. After determining that I was the wife (or still am the wife) we started talking and this is what she says to me, "Did you know that Dean was standing up yesterday?" (I used the quotation marks because my homework last night was to grade one of Riley's essays on Davey Jones and he used quotations every time someone in the story said something and I was so impressed - Anyone impressed?) I know, I said exactly the same thing: STANDING UP are you SERIOUS. STANDING UP!!!!! Lana had come in the room to let Dean know she hadn't forgot about him and that she was coming to work with him around 1, maybe 2 since he was napping. The speech and physical therapists had both already been there. Lana said she was taking him to the gym so they could work on standing again. She said he is 50% standing on his own. Can you f _ _ _'n believe it????
So, I am back at work and then I get an email from Steve saying he stopped by to spend some time with Deano and that they put him in a chair and took him outside. Thanks for letting him use your cap. Great picture. Thank you.
I am driving home from the hospital this evening and I see that I have a message from Kyle Johnson telling me he went to visit Deano today and when he was there he got to see Deano in the gym STANDING UP. OMG!!!!! Thank you Kyle for being there :-)
But here in my heart I give you the best of my love
Oh sweet darlin' you get the best of my love
P.S. Thank you to everyone for the support and continued prayers. Please keep it coming. Look how far we've come.
P.S.S. Ricky Elliott we are missing you. Is everything okay with you????
P.S.S.S Hey Colorado Uncle Jim, my sight was Street Lights.
Look at the way that we live(d)
Wastin' our time on cheap talk and wine
Left us so little to give
That same old crowd
Was like a cold dark cloud
That we could never rise above
This is another BIG day so I am going to say that we just may have passed mile marker 4 and are now headed toward mile marker 5.
Right now the adrenaline has surged and it almost makes you feel drunk. If you were drunk would you feel like you could keep running forever. Let me have another drink and I will let you know. (Just kidding it is a weeknight and I do have to work tomorrow).
I popped into the hospital around 11:45 this morning and I am so happy that when I was there the occupational therapist, Lana, made a visit. What a truly, truly, truly nice woman. After determining that I was the wife (or still am the wife) we started talking and this is what she says to me, "Did you know that Dean was standing up yesterday?" (I used the quotation marks because my homework last night was to grade one of Riley's essays on Davey Jones and he used quotations every time someone in the story said something and I was so impressed - Anyone impressed?) I know, I said exactly the same thing: STANDING UP are you SERIOUS. STANDING UP!!!!! Lana had come in the room to let Dean know she hadn't forgot about him and that she was coming to work with him around 1, maybe 2 since he was napping. The speech and physical therapists had both already been there. Lana said she was taking him to the gym so they could work on standing again. She said he is 50% standing on his own. Can you f _ _ _'n believe it????
So, I am back at work and then I get an email from Steve saying he stopped by to spend some time with Deano and that they put him in a chair and took him outside. Thanks for letting him use your cap. Great picture. Thank you.
I am driving home from the hospital this evening and I see that I have a message from Kyle Johnson telling me he went to visit Deano today and when he was there he got to see Deano in the gym STANDING UP. OMG!!!!! Thank you Kyle for being there :-)
But here in my heart I give you the best of my love
Oh sweet darlin' you get the best of my love
P.S. Thank you to everyone for the support and continued prayers. Please keep it coming. Look how far we've come.
P.S.S. Ricky Elliott we are missing you. Is everything okay with you????
P.S.S.S Hey Colorado Uncle Jim, my sight was Street Lights.
Monday, June 1, 2009
Monday, June 1
Since we just passed mile marker 3, it is probably safe to assume that we are now headed for mile marker 4. At this stage I need to watch my form. I have to make sure my shoulders aren't moving up towards my ears (and then again which direction exactly can they go). I have to make sure my top half is not falling forward or leaning back to much. Form is very important in preventing injury. What I really need to keep in check, however, are the emotions that creep up: anger, impatience, frustration, doubt...(Are you getting the picture).
This afternoon I saw Dr. Englandoff and she said Deano is doing very well (and he is looking real good in that goatee he is sporting). She said the trach button could actually be removed within the next couple of days. She also said the catheter may very well be removed, soon.
This evening when I saw Deano he appeared very relaxed. What I am looking at, first of all, is his face and then to the machine which monitors his oxygenation and his beats per minute. The goal for the oxygenation is 100 and of course the lower the better on the beats per minute. Tonight the numbers were 100 and 74 respectively.
Okay so all this has got me to thinking (okay keep the thinking jokes to yourself - I do think on occasion). And as I was driving home one evening I shared my thoughts with May. I am starting to sense that with the removal of so many things and Deano's continued progress, we may be looking for another home in the no so distant future. I will have to come up with a nice gentle way to broach the conversation with the Dr.
Time for me to put the little one to bed (ha ha I can hear you laughing. Of course I am not talking about Riley; I am talking about me).
Sweet dreams all you out there in blog land.................
This afternoon I saw Dr. Englandoff and she said Deano is doing very well (and he is looking real good in that goatee he is sporting). She said the trach button could actually be removed within the next couple of days. She also said the catheter may very well be removed, soon.
This evening when I saw Deano he appeared very relaxed. What I am looking at, first of all, is his face and then to the machine which monitors his oxygenation and his beats per minute. The goal for the oxygenation is 100 and of course the lower the better on the beats per minute. Tonight the numbers were 100 and 74 respectively.
Okay so all this has got me to thinking (okay keep the thinking jokes to yourself - I do think on occasion). And as I was driving home one evening I shared my thoughts with May. I am starting to sense that with the removal of so many things and Deano's continued progress, we may be looking for another home in the no so distant future. I will have to come up with a nice gentle way to broach the conversation with the Dr.
Time for me to put the little one to bed (ha ha I can hear you laughing. Of course I am not talking about Riley; I am talking about me).
Sweet dreams all you out there in blog land.................
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